Kit McFarlane (M.S.W., L.C.S.W.), who works at Baltimore Huntington's Disease Center & HDSA Center of Excellence, was a major provider of useful information through an interview via email. She expressed, "I'm glad young people are learning about Huntington's Disease. It's a very terrible disease, but it varies radically from one person to another." She goes on to forward us onto a Huntington's Disease Forum, giving us primary sources into the lives of individuals with relatives diagnosed with Huntington's Disease.
In this Forum, we are able to conclude the actuality of everyday life for these people. A devastated husband states, "Tania "my love" passed away on 11-28-2010 at the age of 37, from a long, courageous battle against Huntington's Disease." He talks about how even when accompanied by this disease, she never gave up hope and despite a devastating final year and a half of her life, she did not allow Huntington's to consume that spirit. He spoke of how hard it was to finally let her go and how this disease, even though it did not end his life, he felt as though it did. He expressed the limitations she had to live with, such as not being even being able to function properly as to get dressed in the mornings. At the end of his forum post, he states, "Tania will be missed, but never forgotten and now the angel that walked on earth is looking down at us and smiling."
Huntington's Disease Forum: http://www.hdsa.org/living-with-huntingtons/wallrem.html
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